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Down Syndrome Mother

An Uncertain Future

Posted by on Apr 11, 2012 in Down Syndrome Mother | 0 comments

But as much as I want Eric to be able to function independently one day, there’s a chance he may not be able to. For every kid with Down syndrome who goes to college there are thousands who don’t. Down syndrome, like autism, is a spectrum. No two people with DS are alike. And I can’t stay in a state of denial about what Eric’s future may hold.

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No Road Maps

Posted by on Apr 11, 2012 in Down Syndrome Mother | 0 comments

When our kids are born we already have their lives mapped out. We can’t help but do this. We imagine them walking, talking, playing, growing up. So sure, things change along the way, but for most of us those basics are pretty well covered. Walk: check. Talk: check. We know what we can count on. But when your kid has special needs it all goes right out the window.

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Need A New Kid?

Posted by on Apr 11, 2012 in Down Syndrome Mother | 0 comments

Eric would be a good addition to any family, maybe to yours. He gives hugs any time he’s asked, using his entire body to hug with abandon. You haven’t really been hugged until you have been hugged by Eric. He also knows everyone’s name (even if he can’t say it in a way you understand), and doesn’t mind always coming in last for every race.

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Off To Never Land

Posted by on Apr 11, 2012 in Down Syndrome Mother | 0 comments

Eric is a metalhead. “Enter Sandman” is his anthem. Give him a mosh pit and a Bic lighter, let him grow his five-year old wispy blond hair into an appropriately shaggy mane, and he’s totally there. Groupie. Fist-pumping. Heavy metal makes him come alive, the big bass vibration somehow sustaining him, infusing him with energy way beyond his cognition, taking him to a level of simply being.

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Retarded

Posted by on Apr 11, 2012 in Down Syndrome Mother | 0 comments

Go ahead. Call my kid retarded. I don’t mind. No, that’s not a challenge, go ahead call my kid retarded I DARE YOU. (And then WHAM! Off with your head!) It’s not a trick. It’s not. Really. It’s … an invitation. Retarded. We say that word while conjuring thoughts of kids who drool a little, their slack jaws a symbol of the blank minds we imagine inside. The short bus. Special ed. Less than. Not as good as. Not, um, normal. But what is it really? Retarded. Slow. Slower.

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Radar

Posted by on Apr 11, 2012 in Down Syndrome Mother | 0 comments

I spot them, the people with Down syndrome, a mile away. There’s something about them that’s instantly recognizable to me, something in the way they hold themselves or the way they look at other people. It’s like they are my son Eric, just in different bodies. He’s a five year old boy but I still see him in teenage girls and indeterminate-aged men. I see Eric everywhere.

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